Dr. Bartha Maria Knoppers joins CGEn’s Board of Directors
CGEn is pleased to announce the appointment of Dr. Bartha Maria Knoppers as a member of our Board of Directors.
Bartha Maria Knoppers, PhD (Comparative Medical Law: Sorbonne, FR), is a Full Professor, Canada Research Chair in Law and Medicine and Director of the Centre of Genomics and Policy of the Faculty of Medicine at McGill University. Since 2005, she has led the Policy Committee of the Canadian Stem Cell Network and chaired the Ethics Working Party of the International Stem Cell Forum (2005-2015). Additionally, she was the founder of the Public Population Project in Genomics (P3G) and CARTaGENE Quebec’s population biobank. She was the Chair of the Ethics and Governance Committee of the International Cancer Genome Consortium (2009-2017) of the Ethics Advisory Panel of WADA (2015-2021), and Co-Chair of the Regulatory and Ethics Workstream of the Global Alliance for Genomics and Health (GA4GH) (2013-2019). In 2015-2016, she was a member of the Drafting Group for the Recommendation of the OECD Council on Health Data Governance and gave the Galton Lecture in November 2017. She holds four Doctorates Honoris Causa and is a Fellow of the American Association for the Advancement of Science (AAAS), the Hastings Center (bioethics), the Canadian Academy Health Sciences (CAHS), and the Royal Society of Canada (RSC). She is also an Officer of the Order of Canada and of Quebec, and was awarded the 2019 Henry G. Friesen International Prize in Health Research, the Till and McCulloch Award for science policy (2020) and the Lifetime Achievement Award from the Canadian Bioethics Society (2021). She served on the International Commission on the Clinical Use of Human Germline Genome Editing in 2020. Currently, she serves on Canada’s: Vaccine Task Force(-2021), Health Data Strategy Expert Advisory Group, CanCOGen’s HostSeq Steering Committee and the COVID Cloud (DNAstack); and is a Member, Scientific Advisory Board of the Human Pangeonome Reference Consortium, USA and Ethics Advisor to the Big Data Big Heart, IMI Project, Europe.